Sup!
Sup!
Sup!
Hey guys, today we're gonna meet my friends.
I'm gonna lower the screen so you can meet them.
Here they are!
I have so many!
I'm so popular!
In this video, I'm gonna be introducing you guys to some of the supplements I take.
Unless I specify otherwise, these are all the brands and doses that my doctor recommends
and I'm gonna be putting the links to them in the description.
You should start with the lowest possible dose to make sure you don't have a bad reaction
to anything.
My doctor always say, "Start low, go slow!"
First, quick disclaimer.
So, this shouldn't come as a shock to anyone, but...
I'm not a doctor!
So just keep that in mind when you're taking my advice.
Ok!
The first guy up is called Inosine.
Inosine!
This is an immunomodulator, which is pretty helpful considering we have an autoimmune.
This guy inhibits the production of proinflammatory cytokines
Cytokines?
I don't know how to pronounce them, and the particular cytokines I definitely can't remember or
pronounce.
I do know that, when I don't take it, I really, really notice the difference.
This particular company, which again, this is the brand my doctor recommended, really
are terrible about shipping things on time.
I always have to wait for it.
One time I was without it for a month, and I was, not human.
I was dead.
This is precious, precious stuff.
My precious...
It is about $15 for 60 capsules.
You start off on one capsule a day, and then you move up to two capsules a day.
So 60 capsules eventually is one month's worth. So this costs $15 a month.
Okay, next!
It has been so long, but I still cannot pronounce this.
Here you go.
Maybe you can pronounce this?
Phosphatidyl Serine
Serin? Serine?
Whatever.
This guys is for brain fog, so he helps with concentration, memory, focus.
But obviously not my ability to pronounce letters.
Initially, this will last you for 3 months.
And it is about $30 for 90, so it's gonna initially cost you about $10 a month, initially.
And then it will be twice that because you're gonna be taking it twice a day.
Ok, next!
Ok, this guy is Acetyl-L-Carnitine.
Again, I don't know if I'm pronouncing it anywhere near correctly.
It's a really common CFS supplement because it supposedly helps with mitochondrial function, which we *think*
is either inhibited or defective in CFS.
To be honest, I don't feel a big difference when I skip this, but my doctor wants me to
take it, so I'm gonna be a good patient.
This guy comes with 200 capsules and you take 2 of them a day.
So each one is 500 mg, so you take 1,000mg a day.
Ok, next!
Ok, the next one is one of my favorites.
It's magnesium!
This magnesium is called magnesium orotate
I've tried a lot of different kinds of magnesiums, but again, this is the one that my doctor recommended.
You take a quarter of a teaspoon
It looks like, basically it looks like powder
and it tastes like chalk, so it tastes kinda gross.
And it doesn't really blend well with the water.
It has really awesome effects, but it's really not a great experience drinking it.
I do have a tip for how to make the experience a little bit better
And that's mixing it with D-Ribose, which tastes just like sugar.
I'll talk about D-Ribose later.
Magnesium helps with so many things.
It helps with muscle pain; with those tremors and spasms and
seizure-like activity that we love so much;
and this might be placebo, but I really think it helps my mood, and just general sense of
well-being.
So I really, really love magnesium, it's one of my best friends,
but I am not good about taking it, because it tastes so bad.
Okay.
Next!
I've never come across this in my own research, but when I finally found medical help,
one of the first things my doctor did is she tested me for mutations on a gene called MTHFR.
And she nailed it!
Because I am indeed a mutant.
Mutations to this gene can cause a whole laundry list of crappy things, but one of those things
is the inability to convert folic acid into folate.
THIS IS A LOT OF SCIENCE.
I am NOT going to confuse you with all the science, but basically,
you need your damn folate.
You need to take your folate in a form that's already methylated for you.
But guess what!
Methylated vitamins are not cheap.
Originally my doctor prescribed methylfolate, and it cost a bazillion dollars, and
my insurance wouldn't cover it.
And I don't know if you know this, but…
(whispers) I don't have a bazillion dollars (whispers)
Instead, I found one online, and it was cheaper (still not cheap) and she approved.
So this is the kind that I take
It's Metabolic Maintenance
And it is 90 capsules at 10mg each.
And this thing runs around $70 for 90 capsules, which is still a lot.
It's not a bazillion, but it's still a lot.
But wait, there's more!
You can't methylate folic acid, and you also can't methylate B-12.
For about 3 months, I was injecting myself with B12 (I'm on break right
now because stabbing yourself in the thigh twice a week is not as fun as it sounds!)
You have to order your methylated B12 injections from a special pharmacy and they basically send you a needle that's already full of methylated B12.
You stab yourself, or have
somebody who really doesn't like you stab you,
or have your best friend stab you
just find somebody who really likes to stab.
Methylated vitamins are expensive
and painful, so I definitely think that if you want to go that route, you should get yourself tested
for the mutation to the MTHFR gene,
because you might not need them
you lucky independently-methylating bastards.
If you do have a mutation to this gene, you can at least be happy that it has such a dirty name...
You can ask that everyone you know call you a "badass motherf***er."
That's it for the doctor recommended supplements, but I do take a few more on my own.
So the following are ones that I take that I found. Not doctor recommended. Just my preferences.
This one is called Curcubrain.
It is curcumin.
Which is basically turmeric.
Tumeric? Tur...?
You know what?
I cannot pronounce that, either.
I cannot pronounce things.
Turmeric, or however you say it, has anti-inflammatory properties.
I also drink turmeric tea when the muscle pain gets on my nerves.
This particular brand crosses the blood-brain barrier.
So it helps with body inflammation and also brain inflammation.
It's nothing major, it's not as strong as a prescription anti-inflammatory.
This is for when the pain is not tha bad, but it's just annoying.
Okay.
The next one is...
D-Ribose.
Ok, this is D-Ribose, or D-Raibose
If you think I can pronounce things, you should know better by now!
D-Ribose is a type of sugar, and it tastes just like sugar.
And you can mix it with the magnesium orotate to improve the taste
So this concoction tastes better than just this by itself.
This thing helped the pain so much omgggg I want to marry it.
Basically, for this guy, I followed the Teitelbaum protocol.
Dr. Teitelbaum did a study where he tested groups of CFS patients and groups of Fibromyalgia patients.
And gave them D-Ribose, D-Raibose, whatever the f***
And he found that there was improvement for both, but *a lot* of improvement for the fibro patients.
So it really, really helps with pain.
This trial was placebo-controlled, and double-blind...
...unlike some trials we know.
It looks like this. It's a powder, it looks just like sugar.
One scoop is 5 grams.
You take one scoop and you mix it with water.
I did 15 grams for 3 weeks, and then I did 10 grams for another 3 weeks.
So I was on it for 6 weeks.
After I finished the first 3 weeks, the pain became a lot less severe and a lot less constant.
And it's never been as constantly bad as it was before I went on the D-Ribose protocol.
This is kind of a miracle sugar.
After 6 weeks, I found that the benefits remained the same, they didn't lessen, but they didn't
increase, so after a while I just stopped taking it.
It kind of ran its course, did its magic.
The effects were long lasting. I'm still feeling this lower level of pain and it's a lot less constant.
And it's been like, 6 months.
So in my case, it seems to have had a very long lasting effect.
I don't have a favorite brand of R-Ribose, so I'm going to put a number of links and you guys should choose whichever
one is cheapest that day.
One of the last ones is
this one!
This is my most huggable friend, because he's so big!
This is called the Energy Revitalization System.
It is a big bottle of powder. Which looks like that.
And it comes with a scoop.
You mix this powder with water and you drink it once a day.
And that lasts me about a month. A little over a month.
It's got...
It's got fiber, protein, vitamin A, vitamin B, vitamin C, E, K, B1, B2, B6, B12, magnesium, zinc...
and it also has whey protein, malic acid, and a whooole bunch of stuff that I can't pronounce.
It also has amino acids...
So it's got a whole list of aminos, which is nice.
Teitelbaum claims that one cup of this powder a day is the equivalent of 50 pills.
And I can believe that because it's so much stuff...
I don't know if you can see any of that.
The good part is that it saves you a lot of money and pill swallowing.
The bad part is that it contains milk and soy, so if you're allergic to either of
those, this is not a great supplement for you.
And I'm not sure why he included those because so many of us are super, super sensitive.
Ok, the last supplement today is melatonin
for sleeeeeep.
I've had insomnia my whole life, CFS insomnia is nothing new. But the thing about CFS insomnia is that
the effects of it are much more harmful because
Obviously, I crash, and the pain increases, and I get tremors,
and the whole fun thing.
It's just more harmful when you're sick.
I do take prescription sleep aids, but I find that melatonin works better.
And this guy is 3 mg, but they come in 3, 5, you can even get it up to 10.
I don't have a favorite brand. I just find that this guy really works for me.
I hope you've had a great time meeting my friends!
If you have any friends of your own that you'd like to share with us, please feel free to
talk about them in the comments below. As I said, most of my followers don't have access to medical care, so I think that
under these circumstances we have to help each other as much as possible, and spread information
as much as possible.
Thanks for watching!
I'm gonna try to send you energy through the screen.
Do you feel it?
Do you feel the energy?
Is it working?
Sometimes, doctors will be like,
"You need to take your folic acid!"
And you need to be like,
"Nah, I can't methylate that sh*t."
It's a really common CFS supplement because it helps with mitochondri...BAH blach bach bah
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