which I almost like broke my leg last night because it was my good leg too - is
that weird probably a little bit good morning I don't name it oh it's like 10
o'clock right now I just got out of bed I've been awake for a few hours so I
don't know why I woke up so early today annoying but this is what we got at
Target yesterday we didn't find an advent calendar because I don't want one
it's Lego and I don't want one this chocolate because I can't eat the
chocolate so you know we got that because my tree was an epic fail there
are my gingerbread tree so we will try again next year this is what it looks
like now those are all just the tree parts that crumbled and fell on top of
each other and then the family started eating the tree last name there lickety
siliceous but it's not that's too bendy to be the structure okay and then I'm oh
stop talking for a moment so that I can turn off my music anyway here it's Beth
so oh I love thank the tripod and to probably change the battery but whatever
we today is Wednesday so tomorrow I have PT and then Friday it's Friday it's the
day before break for everybody around here
where's my tripod oh hang on changing battery and then I'll be back
so today sorry you're turning around because I'm trying to screw you onto a
tripod I am go I have at least I'm going to try to pack for Disneyland cuz I
still think we're going think we're going I guess as long as I'm not like I
guess the best way to put it is dad we're gonna go because why not it's not
like we're gonna let go like crazy people and be like party at Disney Lea
no it's more like Wednesdays and I go together it's like look at the lights
look at the lights that's really what we do and then like we might go in like
pirates or something and then sometimes we go in a few other IDEs and stuff but
most the time we just kind of stroll around and observe the scenery and the
Seuss eats snacks so and in this well I well this is a laundry that needs to be
put away but I will start with that and then we will pack but you'll probably
see how awkward my walking is now well I don't know cuz it'll be in fast motion
again so unless I like completely fall over which I almost like broke my leg
last night because and it was my good leg too I got out of bed to turn off my
lights and I like totally crumbled to the ground because my leg went the wrong
way little jerk well anyways I'm gonna set you up here I think this is a good
place and if we start packing because I'm trying not to
wear the clothes that I wanted to take to Disneyland so the last time wearing
this getup I haven't worn this in so long and it already is irritating me
because the neck is weird now back to packing and I need to put on chapstick
because apparently my mother thinks that my lips are extremely corrupt I think
they're just really red because they hurt like the rest of my body but
they're just red and they look dry but they're not he feeling they're not they
just look
well I am nailed unpacking well for the most part like just the clothes part I
stuff to pack like my food and all that but I can do that it on won't get closer
to actually levy but here's my clothes bags those so do you guys want me to do
like a video where you like talk through the way that I pack on like I could do
that before we go to text or something cuz it's pretty similar to the way I
pack the same way to go anywhere but my pajamas are up here yes I do take two
pairs of pajamas for four days just because I don't like to wear the same
pajamas a lot I don't know it's just me I just start to feel dirty after a while
even though I take a shower before I take it before I change into my pajamas
just a me thing I think one two three oh my fluffy jacket and it's supposed to
be kind of warm while we're there like 70s 80s something like that but I'm a
very cold person always cold so I take the fluffy jacket and I packed a jacket
for every day so like basically this is my socks and underwear and then each one
of these has a day of clothes in it jacket shirt pants bra everything -
pants I mean socks and underwear basically and then I just throw them all
into a backpack probably it's gonna be my pink
véra backpack that I used to take to school and then I also carry my watch we
then empty when we get to the hotel and then put that on the back of my
wheelchair as our like park bag even though it's humongous
but it only has two zippers I think so it's really really easy to take in to
the park because to go through security you don't have to undo very much stuff
so I will pack it all into that and then
put away the disaster zone that I created over here that clothes and that
stuff oh the strap that stuff needs to get put away but I'm tired oh my gosh
last night was like the struggle life when I was trying to sleep so I laid
down which I if I'm on my side for some reason right now if I'm on my side I can
breathe fine but I've been lying on my back but on an incline like up a hill
and I started getting the like I couldn't breathe right and I was getting
dizzy and all that oh my fun stuff that usually just
happened I lie flat so I've been lying on the incline up the hill basically and
then I started getting that last night so then I started putting pillows behind
me to see how far up I had to go so that I would feel like normal yo I was almost
sitting straight up so then I was like forget it I'm sleeping on my side which
could be a problem for me potentially pretty quickly sleeping on my side like
that because I start to get bed sores on my sides yes I know
I'm like 80 years old and I get bed sores but it's true I like I had the one
that was like starting on my butt like last week so then that's why I've been
sleeping on my back again
my site is okay from last night it shouldn't happen that quickly but it
might start soon this week oh my gosh my lips hurt so much I think they hurt when
I move them so when I talk but I talk a lot because I talk to myself a lot even
when I'm not on talking to y'all like this throughout the day I like just
narrate my life to myself is that weird probably a little bit and it's awesome
Esther again very quickly jumping topics here but when we go to Disneyland it's
not supposed to rain so I'm not taking my rain jacket with us because I would
eat right there take fluffy or the rain jacket so I will just um I'm taking an
umbrella though because ain't nobody want to be rained on so yeah okay I'm
gonna pack everything up into the bag and then I'll show the after when I get
everything put into that bag and then I also take I either I'm going to wear my
tennis shoes or I'm going to well I guess I could wear the silver bands or
my doesn't matter really doesn't matter but I take two pairs of shoes with this
one that I wear some days and then one that I wear the other some days just
because now that I have to wear my brace again and that pushes the back of my
shoe on when I wear tennis shoes into my heel so it creates bruises so I
sometimes I will wear my uggs or rain boots but since not gonna rain I'm not
gonna take rain boots cuz I don't want to look dumb the bag the bag is nothing
and then here's fluffy and that this clothes is my clothes that I set aside
to wear on Saturday I don't know driving day basically
and this is what happened with the rest of disaster so and I hung up some of it
and then I don't like taking all of my clothes though because then when I take
things down then there's hangers hanging I think that's another just a me thing
that I don't like to have happening in my world but so I keep it shirts hanging
down there all the time so then also when I have to get dressed in a hurry I
don't have to unhanged things so gonna edit videos and then why don't we do
something fighting or not exciting I will talk again bye buddy
I edited like one and a half videos and one end picture things but my arm is
tired oh you know what's the struggle when your arm gets tired editing videos
cuz it's just like click click click click on the computer but I will try to
edit more I guess later or tomorrow or Friday it's probably doing a lot of
editing on Friday just push through the struggles I don't I have enough videos
that are up like uploaded to get through
next like until we come back from the EMG next week but hopefully if we're
still hoping to not have to do that on next Wednesday maybe we're hoping for it
to be moved to either Friday although I don't think it can be on Friday because
that office is used by genetics and Rheumatology I think on Fridays but
whatever we're still trying to get it move to then and then otherwise on
Thanksgiving I'll just edit some videos well the family's cooking because I'm
not very helpful Sylla namma watch TV and be a couch
potato until later we're back to the same where I talk about vlogging in the
morning well this money I'd actually did pretty
good I fucked like half of the day and then I set you down forget why I push
you and then take it and then end up walking again after I take it about but
everything but it is only let's see if we could see that eight o'clock and I am
I just in shower this time because usually I usually take a shower really
early but they have to go to the dunk do the everyday you can't really take a
shower early cuz I look at you're weird when you come in like a wet mop but
anyways um tomorrow I have PT and grandmas gonna drive me don't worry
world I'm not driving with one arm one leg and part of a brain I have well I
have an arm and leg and a whole brain it's just half half of you don't work so
well so and then I will be probably going to Graham's house after that and
then Taylor will pick me up and take me to Zeus's school and we're gonna hang
out tomorrow and then don't know what else after probably go to the doctor's
today I just saw the nurse to have my temperature taken it was like 100.3 or
something but I could hear my doctor I could see her beat at her desk but I
didn't see her like talk to her today but anyways thanks for watching and I'll
see you tomorrow bye
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