Is Tourette's a social disability?
No.
Hey guys! My name is Jaleesa and I'm back for another video (fidget) and there is a lot of nuance
to that answer and to that question that I want to unpack today.
A lot of people in the Tourette's community emphasize the social impact (cats) that a
condition like Tourette's can have (fidget) and some people do experience this.
For example, if you're around friends and coffee and you spill said coffee all over
your friends.....oops, or if you have tics that injure people or insult them directly,
that could affect (ah, fidget) the way that you socially interact with such friends.
Disclaimer: Most people with Tourette's do not have tics like this, so if you meet someone
with Tourette's (fidget) you don't have to worry about them like punching you in the
face or something unless they themselves warn you about it.
Also, assuming someone is dangerous because of their diagnosis makes you a jerk so dooonn't.
However, I think the "social affect" that Tourette's might have is largely overstated
(fidget) because of the way we as a society view disability.
As a society, we have largely relied on the Medical (ha) Model of Disability
to understand disability.
Basically, this just means that whatever problems you face that are related to your disability
are specifically because of that disability.
In this model, if a person who can't walk and is in a wheelchair (ah, fidget) can't
make it up a flight of stairs to their job interview, the problem here
is that they can't walk.
But a lot of disabled activists have been using the Social Model of Disability, which
basically means that the problems that you face related
to your disability are because of the environment.
In this model, we would say that the stairs are the real obstacle and someone in a wheelchair
can't make it to their job interview on the second floor, and providing things such as
an elevator or ramp or simply having (kk-, fuck) the interview on the first floor, would
all solve this problem.
This idea is probably the more unusual model of disability to most people, so I like to
conceptualize it this way.
Imagine a world in which everyone can fly and the world is built for flying people,
but you can't fly, so you can't make it to that job interview that takes place practically
in the clouds because (ah) no one else in your world needs things like stairs or lifts
[apparently I'm British today :p] or ladders.
In the same way, the world we live in today was not built for disabled people in mind
[More information about the Social Model of disability in the description].
I have my own thoughts about both of these models, but all you need to know right now
is that I use them both in different situations and contexts.
(fidget) And I'm explaining all of this to you because I think personally that calling
Tourette's a social disability relies way too much on the medical model.
When we say this, we're basically saying that it's my Tourette's that is affecting my social
life and causing me to be a social outcast in society.
Here's the kicker though (fidget).
When people are curious and understanding and treat me like a person, somehow I make
friends and my Tourette's (fidget) doesn't make those friendships worse.
So, if in some situations, my Tourette's seems to affect my social life and in other situations
it doesn't, maybe my Tourette's (cats) is not the most important variable in this situation.
Maybe it's just people being ableist jerks.
In other words, this is where the social model of disability comes into play because my Tourette's
is not the disabling factor here (ah, fidget).
It's the people around me who happen to be ableist, which is a term that means prejudice
or hatred towards disabled people (nguh).
And if you think that I'm just making up words for things that don't exist, you should spend
a day with me in public.
You'll probably notice the rude stares right away (fidget), but after time goes on, you'll
probably notice other things like people avoiding talking to me (kk-, fuck) or talking to you
instead of me (fidget), people being surprised to find out that I'm actually smart, people
assuming that I can't drive, parents pulling their child away from me and then looking
at me with disgust or fear, people laughing and pointing and just generally making rude
comments or asking invasive questions, etc, etc, etc.
I could go on.
Trust me.
Ableism is a thing.
And this is why I despise the idea that my Tourette's is the reason for this behavior.
My Tourette's might be a catalyst for making these attitudes apparent,
but these attitudes exist regardless.
Even if my Tourette's went away, ableist jerks would not and curing my Tourette's
doesn't make the problem go away.
It's just makes everyone a little bit more comfortable.
That is, until (cats) the next person with Tourette's comes along.
I used to think the way that ableists commonly reacted to me was understandable and sympathetic.
"I mean, I know it's rude to ask about people's medical history and stuff, but maybe this
person who's asking if I've tried this drug or this miracle diet totally unprompted...just..cares
for me a lot and that makes their nosiness totally ok..."
"I know it's rude to stare and we're all taught that, but I mean, I guess (ah, fidget) I do
look pretty weird."
"I mean, I know it's rude to ignore a person when they talk to you, but they probably think
that I'm just doing this for attention."
(ah, fidget) In all of these examples, I was behaving as if my Tourette's made this behavior
understandable while ignoring the many examples (fidget) and experiences that I've had with
people (ah) who don't behave this way when they see me tic.
I kept doing this (fidget) up to the point where my pastor came to my house and asked
me not to come next Sunday (fidget) and I just nodded and agreed because I thought my
disruption warranted my discrimination.
(fidget) And I see the same thought patterns in other disabled people (ah, fidget) when
they're discriminated against . (ah, fidget) We accept unusual, inappropriate and unacceptable
behavior because, quite frankly, we're used to it.
It feels normal to us.
And in my experience and many other disabled people's experiences (squeak, fidget), when
we point out this behavior in others (ah, fidget) , we're often made to feel as if we're
the ones being unreasonable.
I still have trouble convincing my family that the discrimination from my old church
was as bad as it was (kk-, fidget).
They see my former pastor's actions as definitely bad, yes, but also normal and sympathetic.
And that's the problem that I have with the widespread notion that Tourette's is a social
disability as a whole.
It's not the worst thing to say and you're not a horrible person
if you've ever said or believed this.
It usually goes unquestioned in our community and I kind of understand why.
It's a very easy mistake to look at the social isolation that people with Tourette's face
as an inherent problem to having Tourette's because it is so widespread.
I'm not going to hate you or freak out or think you're a terrible person if you say
this and some people actually do have tics (nguh) that affect their social life
in a much more direct way.
However, when we apply this to everyone with Tourette's and say that ticcing in front of
people will inevitably cause social problems because you're ticcing (fidget),
that's indicative of a much larger problem.
So, I hope everyone learned a little bit today (ah, fidget) and if you want to add something
to this conversation or if there's something that I missed or you disagree with the point
that I've made, please leave that in the comments.
I'd love to know all of your guys' thoughts about this issue.
But yeah, I think that's all I've got for you today. Well, actually that's not true.
I'm going to film a video right after this, so if you see me in the same shirt,
I do get dressed (laughs).
But yeah, I guess that's it for this video (fidget).
Like, comment and subscribe if you want to see more of my face (fidget)
and I will see you guys in the next video.
Bye!
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